BATTEN DISEASE
LITTLE WARRIORS.
BIG FIGHT.
Batten disease is a rare and devastating childhood brain disorder that progressively steals the abilities children have worked so hard to gain, their ability to walk, talk, see, play and experience the world around them. There is currently no cure.
Behind every diagnosis is a child, a family and a future that deserves hope.
Together, we can raise awareness, fund vital research and bring hope to families facing the unimaginable. Every voice, every donation and every act of support brings us one step closer to the ultimate goal — a cure.
For every child. Every family.
Every fight.
oUR sTORY
Meet Grayson 🤍
At just three years old, Grayson was diagnosed with CLN2 Batten disease, a rare and devastating childhood disease with no cure. Now his family is fighting to raise awareness, fund research and make every precious moment count.
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MEET THE OTHER FAMILIES
ARCHIE
Archie is bright, cheeky, adventurous 5year old. Just 10 days after his third birthday, his family received the life-changing diagnosis of CLN2 Batten disease.
Now, every milestone is treasured, every ability fiercely protected and every moment together means more than ever.
CHARLOTTE
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Advance Tomorrow Through Today's Gift
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